https://www.spectrumnews.org/features/deep-…utistic-adults/
Der Artikel bezieht sich zwar auf die USA, aber meinem Eindruck nach ist auch hierzulande die gesundheitliche Versorgung für Menschen im Autismusspektrum oft schwierig und sind diese öfters unterversorgt. Die Hürden / Barrieren sind vermutlich auch manchen hier aus eigener Erfahrung bekannt.
Spoiler anzeigen
Besonders schön/hoffnungsvoll finde ich diese Idee:
Until medical schools incorporate information about autism into their curricula, doctors and autistic adults have another resource to help them communicate and build better relationships. In 2016, scientists developed an online healthcare tool kit that offers a multitude of resources, from medical, legal and ethical information to worksheets that can help autistic people manage appointments. The tool kit is accessible through the Academic Autism Spectrum Partnership in Research and Education (AASPIRE), a research collaboration between several organizations.
The centerpiece of the tool kit is an ‘accommodations report’ that an autistic adult or her caregiver can fill out and give to a doctor to inform treatments. “Because everybody on the spectrum is going to be different and have different needs, it’s really hard for me to tell a provider, ‘These are the things you have to do to take care of adults on the spectrum,’” says Christina Nicolaidis, an internist who leads the project. “[The accommodations report] provides really concrete, actionable items that providers would need to know,” she says — items such as an autistic person needing to have dimmed lights during an exam or to know how many test tubes of blood the clinician might draw.
[...]
The tool kit isn’t meant to be a substitute for specialized expertise. “I’ve been focused on autism for years, and I’m still not going to get it all right when I work with an autistic patient,” Nicolaidis says. “But it’s a first step to give people a way to try to make those interactions more effective, to help non-autism healthcare providers know enough about autism to be able to do their jobs.”
Fände ich toll wenn es so etwas hier gäbe. (Und Ärzte auch daran interessiert wären.)